{"id":528415,"date":"2026-03-25T21:35:44","date_gmt":"2026-03-25T20:35:44","guid":{"rendered":"https:\/\/www.dynseo.com\/les-soins-palliatifs-ce-quils-sont-vraiment-et-ce-quils-ne-sont-pas-dynseo-2\/"},"modified":"2026-03-25T21:38:00","modified_gmt":"2026-03-25T20:38:00","slug":"palliative-care-what-they-really-are-and-what-they-are-not","status":"publish","type":"post","link":"https:\/\/www.dynseo.com\/en\/palliative-care-what-they-really-are-and-what-they-are-not\/","title":{"rendered":"Palliative Care: What They Really Are (and What They Are Not)"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;Article HTML&#8221; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;0px||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row admin_label=&#8221;Contenu&#8221; _builder_version=&#8221;4.16&#8243; width=&#8221;100%&#8221; max_width=&#8221;100%&#8221; custom_padding=&#8221;0px||0px||false|false&#8221; 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.toc h4 {font-family:'Montserrat',sans-serif;font-size:14px;font-weight:800;color:var(--dark);margin-bottom:14px;}\n.dbi-art-9a026b .toc ol {padding-left:20px;margin:0;}\n.dbi-art-9a026b .toc li {margin:8px 0;font-size:13px;}\n.dbi-art-9a026b .toc a {color:var(--bleu);font-weight:600;border-bottom:1px solid transparent;transition:border-color .2s;}\n.dbi-art-9a026b .toc a:hover {border-bottom-color:var(--bleu);}\n@media(max-width:600px) {\n.dbi-art-9a026b .article-hero {padding:50px 16px 0;}\n.dbi-art-9a026b .container {padding:0 16px;}\n.dbi-art-9a026b .article-body p {font-size:14px;}\n.dbi-art-9a026b .key-points, .dbi-art-9a026b .info-box, .dbi-art-9a026b .soft-box {padding:22px 20px;}\n.dbi-art-9a026b .famille-box {padding:22px 18px;}\n.dbi-art-9a026b .cta-box {padding:30px 20px;}\n.dbi-art-9a026b .cta-box .cta-buttons {flex-direction:column;max-width:260px;margin:0 auto;}\n.dbi-art-9a026b .btn-cta-white, .dbi-art-9a026b .btn-cta-outline {width:100%;text-align:center;padding:13px 24px;font-size:13px;}\n.dbi-art-9a026b .internal-link {flex-direction:column;text-align:center;gap:12px;padding:22px 18px;}\n.dbi-art-9a026b .idee-recue {flex-direction:column;}\n}<\/p>\n<\/style>\n<p><script type=\"application\/ld+json\">{\"@context\":\"https:\/\/schema.org\",\"@type\":\"Article\",\"headline\":\"Les soins palliatifs : ce qu'ils sont vraiment (et ce qu'ils ne sont pas)\",\"description\":\"Guide clair et bienveillant sur les soins palliatifs en EHPAD \u2014 d\u00e9finition, id\u00e9es re\u00e7ues, r\u00f4le des familles, EMSP, droits du patient.\",\"author\":{\"@type\":\"Organization\",\"name\":\"DYNSEO\",\"url\":\"https:\/\/www.dynseo.com\"},\"publisher\":{\"@type\":\"Organization\",\"name\":\"DYNSEO\"},\"datePublished\":\"2026-03-06\",\"dateModified\":\"2026-03-06\"}<\/script><\/p>\n<div class=\"dbi-art-9a026b\">\n<header class=\"article-hero\">\n<div class=\"article-hero-inner\">\n<nav class=\"article-breadcrumb\">\n      <a href=\"https:\/\/www.dynseo.com\/en\/\">Home<\/a> &rsaquo;<br \/>\n      <a href=\"https:\/\/www.dynseo.com\/en\/healthcare-professionals\/\">Professionals<\/a> &rsaquo;<br \/>\n      Palliative care in Nursing home<br \/>\n    <\/nav>\n<p>    <span class=\"article-category\">&#x1F90D; SUPPORT<\/span><\/p>\n<h1>Palliative care&nbsp;: what they <span class=\"hl\">really are<\/span> (and what they are not)<\/h1>\n<div class=\"article-meta\">\n      <span>&#x1F4C5; March 2026<\/span><br \/>\n      <span>&#x23F1; 17 min read<\/span><br \/>\n      <span>&#x1F9D1;&#x200D;&#x2695;&#xFE0F; By the DYNSEO team<\/span>\n    <\/div>\n<\/p><\/div>\n<div class=\"article-hero-curve\"><\/div>\n<\/header>\n<div class=\"container\">\n<article class=\"article-body\">\n<div class=\"toc\">\n<h4>&#x1F4D1; Table of contents<\/h4>\n<ol>\n<li><a href=\"#definition\">The definition \u2014 simple and essential<\/a><\/li>\n<li><a href=\"#pas-mourir\">Palliative care does not mean that you are going to die tomorrow<\/a><\/li>\n<li><a href=\"#pas-abandon\">Palliative care is not the abandonment of care<\/a><\/li>\n<li><a href=\"#qui\">Who are the palliative care professionals in Nursing home?<\/a><\/li>\n<li><a href=\"#quand\">When do palliative care begin?<\/a><\/li>\n<li><a href=\"#ce-quils-font\">What palliative care actually does<\/a><\/li>\n<li><a href=\"#famille-place\">The role of families in palliative care<\/a><\/li>\n<li><a href=\"#idees-recues\">The 5 most common misconceptions<\/a><\/li>\n<li><a href=\"#emsp\">Mobile palliative care teams (EMSP)<\/a><\/li>\n<li><a href=\"#droit\">A right, not a favor<\/a><\/li>\n<\/ol>\n<\/div>\n<pee>\u201c&nbsp;Palliative care&nbsp;\u201d \u2014 these three words often trigger, in families, a mix of fear and resignation. As if hearing this word meant that all hope has been abandoned, that we have given up, that we let someone die without fighting. This image is profoundly inaccurate \u2014 and the damage it causes is real. Families refuse palliative care for fear of \u201c&nbsp;hastening things&nbsp;\u201d. Caregivers hesitate to say the word. Residents suffer unnecessarily because the right resources were not mobilized in time.<\/pee>\n<pee>This guide aims to clarify things, simply, without medical jargon. Palliative care deserves to be known \u2014 by families going through the end of life of a loved one, and by the caregivers who accompany them every day.<\/pee>\n<h2 id=\"definition\">1. The definition \u2014 simple and essential<\/h2>\n<pee>Palliative care is active care delivered in a holistic approach to a person with a serious, progressive, or terminal illness. Their goal is not to cure \u2014 since healing is no longer possible \u2014 but to <strong>relieve the physical, psychological, social, and spiritual pain<\/strong> of the patient, and to support their loved ones.<\/pee>\n<pee>The World Health Organization defines palliative care as \u201c&nbsp;an approach that improves the quality of life of patients and their families facing a life-threatening illness, through the prevention and relief of suffering, by early identification, assessment, and treatment of pain and other physical, psychological, and spiritual problems&nbsp;\u201d.<\/pee>\n<pee>What is important in this definition&nbsp;: palliative care <strong>begins long before death<\/strong>. They can be implemented months, sometimes years before death. They do not mean the cessation of all treatments \u2014 they mean a change of priority&nbsp;: from healing to comfort, dignity, and quality of life.<\/pee>\n<div class=\"soft-box\">\n  <pee>A useful image for families: imagine two teams working in parallel. One seeks to treat the disease. The other seeks to relieve the person. For a long time, both can coexist. As the disease progresses and curative treatments become less effective or more burdensome than beneficial, the second team gradually takes more space. Palliative care is this second team \u2014 which has always been there, and which becomes central when the time comes.<\/pee>\n<\/div>\n<h2 id=\"pas-mourir\">2. Palliative care does not mean that you will die tomorrow<\/h2>\n<pee>This is probably the most painful misunderstanding. When a doctor suggests &#8220;switching to palliative care&#8221; to a family, they often hear: &#8220;your loved one is going to die very soon.&#8221; That is not what it means.<\/pee>\n<pee>Palliative care can accompany a person for several months, even several years. A person with a progressive neurological disease like ALS, stabilized metastatic cancer, or advanced dementia can benefit from palliative care long before their death \u2014 and this period can be a time of real quality of life, of presence to oneself and to others, of precious moments with loved ones.<\/pee>\n<pee>What palliative care means is that <strong>the primary goal is now comfort and quality of life<\/strong> \u2014 not prolonging life at all costs. This transition is often experienced, retrospectively, as a relief by families who have gone through it. But it takes time to be accepted, and compassionate support to be understood.<\/pee>\n<h2 id=\"pas-abandon\">3. Palliative care is not the abandonment of treatment<\/h2>\n<pee>Another common fear: &#8220;if we switch to palliative care, we will stop taking care of my loved one.&#8221; Again, this is a mistake. Palliative care is not the absence of treatment \u2014 it is different care, focused on relief.<\/pee>\n<pee>In palliative care, we continue to treat infections if they cause discomfort. We continue to manage skin issues, oral care, nursing care. We continue to assess and treat pain \u2014 often with more attention and resources than before. We stop examinations, assessments, hospitalizations that no longer bring benefit to the resident. We stop treatments whose side effects are heavier than the benefits. This selection is not abandonment \u2014 it is a form of therapeutic wisdom that puts the person at the center.<\/pee>\n<div class=\"famille-box\">\n<div class=\"famille-box-label\">&#x1F46A; Family experience<\/div>\n<div class=\"famille-box-title\">\u201cI was afraid they would stop taking care of her\u201d<\/div>\n<pee>Isabelle, whose mother passed away in a Nursing home two years ago: \u201cWhen the doctor told us he was suggesting switching to palliative care, my brother and I thought they would stop all medications, that they would just let her go. It took me time to understand that it was the opposite. My mother received more attention, more visits from the nurse, more comfort care than during the entire period before. She did not suffer. She left peacefully.\u201d<\/pee>\n<div class=\"soignant-box\">\n<div class=\"soignant-box-title\">&#x2665; What the caregiving team can do<\/div>\n<pee>Clearly explain what changes and what does not change when entering palliative care. Name the care that continues. Reassure that attention to the resident does not diminish \u2014 it transforms. This early conversation avoids most misunderstandings.<\/pee>\n  <\/div>\n<\/div>\n<h2 id=\"qui\">4. Who are the palliative care professionals in Nursing homes?<\/h2>\n<pee>Palliative care in Nursing homes is not the responsibility of a single specialized professional. It involves the entire team \u2014 each according to their role and training.<\/pee>\n<pee>The <strong>coordinating doctor<\/strong> assesses the resident&#8217;s condition, decides on palliative direction, prescribes pain relief and sedative treatments, and coordinates the care plan with other professionals. The <strong>nurse<\/strong> assesses pain daily, administers treatments, monitors clinical signs, and informs families. The <strong>nursing assistant<\/strong> provides comfort care, physical presence, quality touch, and relational continuity \u2014 a role often underestimated but absolutely central.<\/pee>\n<pee>The <strong>psychologist<\/strong>, when present, supports the resident in their fears, the family in their anticipatory grief, and the caregivers in their compassion fatigue. The <strong>chaplain or spiritual companion<\/strong> may be called upon according to the resident&#8217;s beliefs. And the <strong>mobile palliative care teams<\/strong> (EMSP) \u2014 specialized external professionals \u2014 can intervene to support the internal team for the most complex situations.<\/pee>\n<h2 id=\"quand\">5. When do palliative care begin?<\/h2>\n<pee>One of the most common mistakes in Nursing homes is waiting too long before activating palliative care. They wait for the resident to be \u201ctruly dying,\u201d while palliative care is much more effective \u2014 and much gentler \u2014 when implemented early in the progression of the disease.<\/pee>\n<pee>Palliative care can be initiated as soon as a disease is recognized as incurable and progressively evolving \u2014 without needing to wait for the last days. In Nursing homes, this often means: during advanced dementia with loss of major functional capacities, during metastatic cancer, during severe heart or kidney failure refractory to treatments, or during extreme frailty in a very elderly resident whose condition is gradually deteriorating.<\/pee>\n<div class=\"info-box\">\n  <pee><strong>&#x1F4A1; The practical guideline.<\/strong> A useful question to initiate palliative reflection: \u201cWould you be surprised if this resident died in the next 12 months?\u201d This simple question, known as the \u201csurprise question,\u201d is a validated clinical tool to identify residents who could benefit from an early palliative approach. If the answer is no \u2014 if the team would not be surprised \u2014 it is time to initiate the conversation about palliative care with the resident and their family.<\/pee>\n<\/div>\n<h2 id=\"ce-quils-font\">6. What palliative care concretely does<\/h2>\n<pee>To make palliative care concrete, here is what it changes in the daily life of a resident in a Nursing home:<\/pee>\n<div class=\"key-points\">\n<h3>&#x2665; What palliative care changes concretely<\/h3>\n<ul>\n<li><strong>Pain is systematically assessed<\/strong> at each visit, with appropriate tools (DOLOPLUS, ALGOPLUS for non-verbal residents) \u2014 not just when the resident complains<\/li>\n<li><strong>Treatments are adapted for comfort<\/strong>: we stop what no longer relieves, we strengthen what does relieve<\/li>\n<li><strong>Unnecessary examinations<\/strong> (repeated blood tests, X-rays, hospitalizations for assessment) are stopped \u2014 they no longer provide information that will change the care approach<\/li>\n<li>The <strong>environment of the room<\/strong> is adapted for comfort: soft lighting, music if the resident liked it, family presence facilitated outside of usual hours<\/li>\n<li>An <strong>advance care plan<\/strong> is written \u2014 to avoid decisions in emergencies and respect the wishes of the resident<\/li>\n<li>The <strong>family is informed and involved<\/strong> \u2014 not afterwards, but in real time and in the decision-making<\/li>\n<li><strong>Mouth, skin, and positioning care<\/strong> are reinforced \u2014 small comfort gestures that have a huge impact on quality of life<\/li>\n<\/ul>\n<\/div>\n<h2 id=\"famille-place\">7. The role of families in palliative care<\/h2>\n<pee>Modern palliative care explicitly recognizes that the family is part of the care unit. It is not just a formula \u2014 it is a practical reality. The suffering of loved ones is taken into account, their need for information is respected, their presence is facilitated, and support is offered to them \u2014 during the palliative phase and after death.<\/pee>\n<pee>In practice, this means that families can and must be involved in important decisions: stopping certain treatments, transitioning to comfort feeding, deciding not to hospitalize in an emergency. These decisions do not solely belong to them \u2014 they first belong to the resident, then to the medical team \u2014 but families have the right to be heard, to understand the reasoning, and to express their emotions around these moments.<\/pee>\n<h2 id=\"idees-recues\">8. The 5 most common misconceptions<\/h2>\n<div class=\"idee-recue\">\n<div class=\"idee-recue-non\">\n<div class=\"idee-recue-label\">&#x2717; Misconception<\/div>\n<pee>\u201cPalliative care is when nothing more can be done.\u201d<\/pee>\n  <\/div>\n<div class=\"idee-recue-oui\">\n<div class=\"idee-recue-label\">&#x2713; Reality<\/div>\n<pee>Palliative care is when we do things differently \u2014 prioritizing comfort over healing. It is an active and demanding approach, not an absence of care.<\/pee>\n  <\/div>\n<\/div>\n<div class=\"idee-recue\">\n<div class=\"idee-recue-non\">\n<div class=\"idee-recue-label\">&#x2717; Misconception<\/div>\n<pee>\u201cMorphine at the end of life speeds up death.\u201d<\/pee>\n  <\/div>\n<div class=\"idee-recue-oui\">\n<div class=\"idee-recue-label\">&#x2713; Reality<\/div>\n<pee>At the right dose, morphine relieves pain without shortening life. Not treating pain is infinitely more problematic than treating with well-dosed morphine.<\/pee>\n  <\/div>\n<\/div>\n<div class=\"idee-recue\">\n<div class=\"idee-recue-non\">\n<div class=\"idee-recue-label\">&#x2717; Misconception<\/div>\n<pee>\u201cAsking for palliative care is abandoning your loved one.\u201d<\/pee>\n  <\/div>\n<div class=\"idee-recue-oui\">\n<div class=\"idee-recue-label\">&#x2713; Reality<\/div>\n<pee>It is, on the contrary, a decision of lucid love \u2014 choosing comfort and dignity rather than therapeutic relentlessness that prolongs suffering.<\/pee>\n  <\/div>\n<\/div>\n<div class=\"idee-recue\">\n<div class=\"idee-recue-non\">\n<div class=\"idee-recue-label\">&#x2717; Misconception<\/div>\n<pee>\u201cPalliative care is reserved for cancers.\u201d<\/pee>\n  <\/div>\n<div class=\"idee-recue-oui\">\n<div class=\"idee-recue-label\">&#x2713; Reality<\/div>\n<pee>Palliative care applies to any serious and progressive illness \u2014 advanced dementia, heart failure, severe COPD, neurological disease, old age with extreme frailty.<\/pee>\n  <\/div>\n<\/div>\n<div class=\"idee-recue\">\n<div class=\"idee-recue-non\">\n<div class=\"idee-recue-label\">&#x2717; Misconception<\/div>\n<pee>\u201cNot eating is suffering.\u201d<\/pee>\n  <\/div>\n<div class=\"idee-recue-oui\">\n<div class=\"idee-recue-label\">&#x2713; Reality<\/div>\n<pee>At the end of life, loss of appetite is a natural process. The body gradually shuts down and no longer needs food as before. Forcing feeding can, on the contrary, create discomfort.<\/pee>\n  <\/div>\n<\/div>\n<h2 id=\"emsp\">9. Mobile Palliative Care Teams (EMSP)<\/h2>\n<pee>Not all nursing homes have an internal palliative care unit \u2014 and that&#8217;s normal. But all nursing homes can call upon a <strong>Mobile Palliative Care Team (EMSP)<\/strong> \u2014 a system created specifically to bring palliative expertise to facilities that do not have it internally.<\/pee>\n<pee>An EMSP is made up of specialized professionals \u2014 doctor, nurse, psychologist, sometimes social worker \u2014 who travel to the establishment at the request of the caregiving team. Their role is one of advice and support, not substitution: they do not replace the existing team, they strengthen it with their expertise and external perspective. They can help assess complex pain, decide on sedation, accompany a difficult conversation with the family, or support exhausted caregivers.<\/pee>\n<pee>Every French department has at least one EMSP. If your nursing home does not regularly call upon it, it is a valuable resource to activate \u2014 without waiting for the situation to become critical.<\/pee>\n<h2 id=\"droit\">10. A right, not a favor<\/h2>\n<pee>It is important to clearly remind: <strong>palliative care is a right in France<\/strong>. The law of June 9, 1999, confirmed and strengthened by the Leonetti law of 2005 and the Claeys-Leonetti law of 2016, guarantees any sick person whose condition requires it access to palliative care and support.<\/pee>\n<pee>This is not a favor granted by an understanding doctor. This is not something that is obtained by insisting. It is a right that the resident and their family can request, demand if necessary, and whose absence can be reported.<\/pee>\n<p><a href=\"https:\/\/www.dynseo.com\/en\/courses\/end-of-life-support-caregiving-approach-and-family-assistance-en\/\" class=\"internal-link\"><\/p>\n<div class=\"internal-link-icon\">&#x1F393;<\/div>\n<div class=\"internal-link-content\">\n<div class=\"internal-link-label\">Certified training<\/div>\n<div class=\"internal-link-title\">End of life: support, caregiving posture, and family support<\/div>\n<div class=\"internal-link-desc\">DYNSEO Qualiopi training \u2014 palliative care, pain, advance directives, family support. For the entire nursing home team.<\/div>\n<\/p><\/div>\n<div class=\"internal-link-arrow\">&#x2192;<\/div>\n<p><\/a><\/p>\n<div class=\"cta-box\">\n<h3>&#x1F393; Train your team in palliative care in nursing homes<\/h3>\n<pee>The DYNSEO training &#8220;End of life: support, caregiving posture, and family support&#8221; covers palliative care in its clinical, ethical, and human dimensions. Qualiopi certified, OPCO funding possible.<\/pee>\n<div class=\"cta-buttons\">\n    <a href=\"https:\/\/www.dynseo.com\/en\/courses\/end-of-life-support-caregiving-approach-and-family-assistance-en\/\" class=\"btn-cta-white\">&#x1F4CB; View the program<\/a><br \/>\n    <a href=\"https:\/\/www.dynseo.com\/formations\/\" class=\"btn-cta-outline\">All training &#x2192;<\/a>\n  <\/div>\n<\/div>\n<div class=\"article-tags\">\n  <a href=\"#\" class=\"article-tag\">palliative care nursing homes<\/a><br \/>\n  <a href=\"#\" class=\"article-tag\">end of life support<\/a><br \/>\n  <a href=\"#\" class=\"article-tag\">mobile palliative care team<\/a><br \/>\n  <a href=\"#\" class=\"article-tag\">right to palliative care<\/a><br \/>\n  <a href=\"#\" class=\"article-tag\">comfort at the end of life<\/a><br \/>\n  <a href=\"#\" class=\"article-tag\">families palliative care<\/a><br \/>\n  <a href=\"#\" class=\"article-tag\">DYNSEO training<\/a>\n<\/div>\n<\/article>\n<\/div>\n<\/div>\n<p>[\/et_pb_code][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":4,"featured_media":100456,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"[et_pb_section fb_built=\"1\" admin_label=\"Article HTML\" _builder_version=\"4.16\" custom_padding=\"0px||0px||false|false\" global_colors_info=\"{}\"][et_pb_row admin_label=\"Contenu\" _builder_version=\"4.16\" width=\"100%\" max_width=\"100%\" custom_padding=\"0px||0px||false|false\" global_colors_info=\"{}\"][et_pb_column type=\"4_4\" _builder_version=\"4.16\" global_colors_info=\"{}\"][et_pb_code admin_label=\"HTML import\u00e9\" _builder_version=\"4.16\" global_colors_info=\"{}\"]<style 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vraiment (et ce qu'ils ne sont pas)\",\"description\":\"Guide clair et bienveillant sur les soins palliatifs en EHPAD \u2014 d\u00e9finition, id\u00e9es re\u00e7ues, r\u00f4le des familles, EMSP, droits du patient.\",\"author\":{\"@type\":\"Organization\",\"name\":\"DYNSEO\",\"url\":\"https:\/\/www.dynseo.com\"},\"publisher\":{\"@type\":\"Organization\",\"name\":\"DYNSEO\"},\"datePublished\":\"2026-03-06\",\"dateModified\":\"2026-03-06\"}<\/script>\n<div class=\"dbi-art-9a026b\">\n<header class=\"article-hero\">\n  <div class=\"article-hero-inner\">\n    <nav class=\"article-breadcrumb\">\n      <a href=\"https:\/\/www.dynseo.com\/\">Home<\/a> &rsaquo;\n      <a href=\"https:\/\/www.dynseo.com\/professionnels-de-sante\/\">Professionals<\/a> &rsaquo;\n      Palliative care in Nursing home\n    <\/nav>\n    <span class=\"article-category\">&#x1F90D; SUPPORT<\/span>\n    <h1>Palliative care&nbsp;: what they <span class=\"hl\">really are<\/span> (and what they are not)<\/h1>\n    <div class=\"article-meta\">\n      <span>&#x1F4C5; March 2026<\/span>\n      <span>&#x23F1; 17 min read<\/span>\n      <span>&#x1F9D1;&#x200D;&#x2695;&#xFE0F; By the DYNSEO team<\/span>\n    <\/div>\n  <\/div>\n  <div class=\"article-hero-curve\"><\/div>\n<\/header>\n\n<div class=\"container\">\n<article class=\"article-body\">\n\n<div class=\"toc\">\n  <h4>&#x1F4D1; Table of contents<\/h4>\n  <ol>\n    <li><a href=\"#definition\">The definition \u2014 simple and essential<\/a><\/li>\n    <li><a href=\"#pas-mourir\">Palliative care does not mean that you are going to die tomorrow<\/a><\/li>\n    <li><a href=\"#pas-abandon\">Palliative care is not the abandonment of care<\/a><\/li>\n    <li><a href=\"#qui\">Who are the palliative care professionals in Nursing home?<\/a><\/li>\n    <li><a href=\"#quand\">When do palliative care begin?<\/a><\/li>\n    <li><a href=\"#ce-quils-font\">What palliative care actually does<\/a><\/li>\n    <li><a href=\"#famille-place\">The role of families in palliative care<\/a><\/li>\n    <li><a href=\"#idees-recues\">The 5 most common misconceptions<\/a><\/li>\n    <li><a href=\"#emsp\">Mobile palliative care teams (EMSP)<\/a><\/li>\n    <li><a href=\"#droit\">A right, not a favor<\/a><\/li>\n  <\/ol>\n<\/div>\n\n<p>\u201c&nbsp;Palliative care&nbsp;\u201d \u2014 these three words often trigger, in families, a mix of fear and resignation. As if hearing this word meant that all hope has been abandoned, that we have given up, that we let someone die without fighting. This image is profoundly inaccurate \u2014 and the damage it causes is real. Families refuse palliative care for fear of \u201c&nbsp;hastening things&nbsp;\u201d. Caregivers hesitate to say the word. Residents suffer unnecessarily because the right resources were not mobilized in time.<\/p>\n\n<p>This guide aims to clarify things, simply, without medical jargon. Palliative care deserves to be known \u2014 by families going through the end of life of a loved one, and by the caregivers who accompany them every day.<\/p>\n\n<h2 id=\"definition\">1. The definition \u2014 simple and essential<\/h2>\n\n<p>Palliative care is active care delivered in a holistic approach to a person with a serious, progressive, or terminal illness. Their goal is not to cure \u2014 since healing is no longer possible \u2014 but to <strong>relieve the physical, psychological, social, and spiritual pain<\/strong> of the patient, and to support their loved ones.<\/p>\n\n<p>The World Health Organization defines palliative care as \u201c&nbsp;an approach that improves the quality of life of patients and their families facing a life-threatening illness, through the prevention and relief of suffering, by early identification, assessment, and treatment of pain and other physical, psychological, and spiritual problems&nbsp;\u201d.<\/p>\n\n<p>What is important in this definition&nbsp;: palliative care <strong>begins long before death<\/strong>. They can be implemented months, sometimes years before death. They do not mean the cessation of all treatments \u2014 they mean a change of priority&nbsp;: from healing to comfort, dignity, and quality of life.<\/p>\n<div class=\"soft-box\">\n  <p>A useful image for families: imagine two teams working in parallel. One seeks to treat the disease. The other seeks to relieve the person. For a long time, both can coexist. As the disease progresses and curative treatments become less effective or more burdensome than beneficial, the second team gradually takes more space. Palliative care is this second team \u2014 which has always been there, and which becomes central when the time comes.<\/p>\n<\/div>\n\n<h2 id=\"pas-mourir\">2. Palliative care does not mean that you will die tomorrow<\/h2>\n\n<p>This is probably the most painful misunderstanding. When a doctor suggests \"switching to palliative care\" to a family, they often hear: \"your loved one is going to die very soon.\" That is not what it means.<\/p>\n\n<p>Palliative care can accompany a person for several months, even several years. A person with a progressive neurological disease like ALS, stabilized metastatic cancer, or advanced dementia can benefit from palliative care long before their death \u2014 and this period can be a time of real quality of life, of presence to oneself and to others, of precious moments with loved ones.<\/p>\n\n<p>What palliative care means is that <strong>the primary goal is now comfort and quality of life<\/strong> \u2014 not prolonging life at all costs. This transition is often experienced, retrospectively, as a relief by families who have gone through it. But it takes time to be accepted, and compassionate support to be understood.<\/p>\n\n<h2 id=\"pas-abandon\">3. Palliative care is not the abandonment of treatment<\/h2>\n\n<p>Another common fear: \"if we switch to palliative care, we will stop taking care of my loved one.\" Again, this is a mistake. Palliative care is not the absence of treatment \u2014 it is different care, focused on relief.<\/p>\n\n<p>In palliative care, we continue to treat infections if they cause discomfort. We continue to manage skin issues, oral care, nursing care. We continue to assess and treat pain \u2014 often with more attention and resources than before. We stop examinations, assessments, hospitalizations that no longer bring benefit to the resident. We stop treatments whose side effects are heavier than the benefits. This selection is not abandonment \u2014 it is a form of therapeutic wisdom that puts the person at the center.<\/p>\n\n<div class=\"famille-box\">\n  <div class=\"famille-box-label\">&#x1F46A; Family experience<\/div>\n  <div class=\"famille-box-title\">\u201cI was afraid they would stop taking care of her\u201d<\/div>\n  <p>Isabelle, whose mother passed away in a Nursing home two years ago: \u201cWhen the doctor told us he was suggesting switching to palliative care, my brother and I thought they would stop all medications, that they would just let her go. It took me time to understand that it was the opposite. My mother received more attention, more visits from the nurse, more comfort care than during the entire period before. She did not suffer. She left peacefully.\u201d<\/p>\n  <div class=\"soignant-box\">\n<div class=\"soignant-box-title\">&#x2665; What the caregiving team can do<\/div>\n    <p>Clearly explain what changes and what does not change when entering palliative care. Name the care that continues. Reassure that attention to the resident does not diminish \u2014 it transforms. This early conversation avoids most misunderstandings.<\/p>\n  <\/div>\n<\/div>\n\n<h2 id=\"qui\">4. Who are the palliative care professionals in Nursing homes?<\/h2>\n\n<p>Palliative care in Nursing homes is not the responsibility of a single specialized professional. It involves the entire team \u2014 each according to their role and training.<\/p>\n\n<p>The <strong>coordinating doctor<\/strong> assesses the resident's condition, decides on palliative direction, prescribes pain relief and sedative treatments, and coordinates the care plan with other professionals. The <strong>nurse<\/strong> assesses pain daily, administers treatments, monitors clinical signs, and informs families. The <strong>nursing assistant<\/strong> provides comfort care, physical presence, quality touch, and relational continuity \u2014 a role often underestimated but absolutely central.<\/p>\n\n<p>The <strong>psychologist<\/strong>, when present, supports the resident in their fears, the family in their anticipatory grief, and the caregivers in their compassion fatigue. The <strong>chaplain or spiritual companion<\/strong> may be called upon according to the resident's beliefs. And the <strong>mobile palliative care teams<\/strong> (EMSP) \u2014 specialized external professionals \u2014 can intervene to support the internal team for the most complex situations.<\/p>\n\n<h2 id=\"quand\">5. When do palliative care begin?<\/h2>\n\n<p>One of the most common mistakes in Nursing homes is waiting too long before activating palliative care. They wait for the resident to be \u201ctruly dying,\u201d while palliative care is much more effective \u2014 and much gentler \u2014 when implemented early in the progression of the disease.<\/p>\n\n<p>Palliative care can be initiated as soon as a disease is recognized as incurable and progressively evolving \u2014 without needing to wait for the last days. In Nursing homes, this often means: during advanced dementia with loss of major functional capacities, during metastatic cancer, during severe heart or kidney failure refractory to treatments, or during extreme frailty in a very elderly resident whose condition is gradually deteriorating.<\/p>\n\n<div class=\"info-box\">\n  <p><strong>&#x1F4A1; The practical guideline.<\/strong> A useful question to initiate palliative reflection: \u201cWould you be surprised if this resident died in the next 12 months?\u201d This simple question, known as the \u201csurprise question,\u201d is a validated clinical tool to identify residents who could benefit from an early palliative approach. If the answer is no \u2014 if the team would not be surprised \u2014 it is time to initiate the conversation about palliative care with the resident and their family.<\/p>\n<\/div>\n\n<h2 id=\"ce-quils-font\">6. What palliative care concretely does<\/h2>\n\n<p>To make palliative care concrete, here is what it changes in the daily life of a resident in a Nursing home:<\/p>\n<div class=\"key-points\">\n  <h3>&#x2665; What palliative care changes concretely<\/h3>\n  <ul>\n    <li><strong>Pain is systematically assessed<\/strong> at each visit, with appropriate tools (DOLOPLUS, ALGOPLUS for non-verbal residents) \u2014 not just when the resident complains<\/li>\n    <li><strong>Treatments are adapted for comfort<\/strong>: we stop what no longer relieves, we strengthen what does relieve<\/li>\n    <li><strong>Unnecessary examinations<\/strong> (repeated blood tests, X-rays, hospitalizations for assessment) are stopped \u2014 they no longer provide information that will change the care approach<\/li>\n    <li>The <strong>environment of the room<\/strong> is adapted for comfort: soft lighting, music if the resident liked it, family presence facilitated outside of usual hours<\/li>\n    <li>An <strong>advance care plan<\/strong> is written \u2014 to avoid decisions in emergencies and respect the wishes of the resident<\/li>\n    <li>The <strong>family is informed and involved<\/strong> \u2014 not afterwards, but in real time and in the decision-making<\/li>\n    <li><strong>Mouth, skin, and positioning care<\/strong> are reinforced \u2014 small comfort gestures that have a huge impact on quality of life<\/li>\n  <\/ul>\n<\/div>\n\n<h2 id=\"famille-place\">7. The role of families in palliative care<\/h2>\n\n<p>Modern palliative care explicitly recognizes that the family is part of the care unit. It is not just a formula \u2014 it is a practical reality. The suffering of loved ones is taken into account, their need for information is respected, their presence is facilitated, and support is offered to them \u2014 during the palliative phase and after death.<\/p>\n\n<p>In practice, this means that families can and must be involved in important decisions: stopping certain treatments, transitioning to comfort feeding, deciding not to hospitalize in an emergency. These decisions do not solely belong to them \u2014 they first belong to the resident, then to the medical team \u2014 but families have the right to be heard, to understand the reasoning, and to express their emotions around these moments.<\/p>\n\n<h2 id=\"idees-recues\">8. The 5 most common misconceptions<\/h2>\n\n<div class=\"idee-recue\">\n  <div class=\"idee-recue-non\">\n    <div class=\"idee-recue-label\">&#x2717; Misconception<\/div>\n    <p>\u201cPalliative care is when nothing more can be done.\u201d<\/p>\n  <\/div>\n  <div class=\"idee-recue-oui\">\n    <div class=\"idee-recue-label\">&#x2713; Reality<\/div>\n    <p>Palliative care is when we do things differently \u2014 prioritizing comfort over healing. It is an active and demanding approach, not an absence of care.<\/p>\n  <\/div>\n<\/div>\n\n<div class=\"idee-recue\">\n  <div class=\"idee-recue-non\">\n    <div class=\"idee-recue-label\">&#x2717; Misconception<\/div>\n    <p>\u201cMorphine at the end of life speeds up death.\u201d<\/p>\n  <\/div>\n  <div class=\"idee-recue-oui\">\n    <div class=\"idee-recue-label\">&#x2713; Reality<\/div>\n    <p>At the right dose, morphine relieves pain without shortening life. Not treating pain is infinitely more problematic than treating with well-dosed morphine.<\/p>\n  <\/div>\n<\/div>\n\n<div class=\"idee-recue\">\n  <div class=\"idee-recue-non\">\n    <div class=\"idee-recue-label\">&#x2717; Misconception<\/div>\n    <p>\u201cAsking for palliative care is abandoning your loved one.\u201d<\/p>\n  <\/div>\n  <div class=\"idee-recue-oui\">\n    <div class=\"idee-recue-label\">&#x2713; Reality<\/div>\n    <p>It is, on the contrary, a decision of lucid love \u2014 choosing comfort and dignity rather than therapeutic relentlessness that prolongs suffering.<\/p>\n  <\/div>\n<\/div>\n\n<div class=\"idee-recue\">\n  <div class=\"idee-recue-non\">\n    <div class=\"idee-recue-label\">&#x2717; Misconception<\/div>\n    <p>\u201cPalliative care is reserved for cancers.\u201d<\/p>\n  <\/div>\n  <div class=\"idee-recue-oui\">\n    <div class=\"idee-recue-label\">&#x2713; Reality<\/div>\n    <p>Palliative care applies to any serious and progressive illness \u2014 advanced dementia, heart failure, severe COPD, neurological disease, old age with extreme frailty.<\/p>\n  <\/div>\n<\/div>\n\n<div class=\"idee-recue\">\n  <div class=\"idee-recue-non\">\n    <div class=\"idee-recue-label\">&#x2717; Misconception<\/div>\n    <p>\u201cNot eating is suffering.\u201d<\/p>\n  <\/div>\n  <div class=\"idee-recue-oui\">\n<div class=\"idee-recue-label\">&#x2713; Reality<\/div>\n    <p>At the end of life, loss of appetite is a natural process. The body gradually shuts down and no longer needs food as before. Forcing feeding can, on the contrary, create discomfort.<\/p>\n  <\/div>\n<\/div>\n\n<h2 id=\"emsp\">9. Mobile Palliative Care Teams (EMSP)<\/h2>\n\n<p>Not all nursing homes have an internal palliative care unit \u2014 and that's normal. But all nursing homes can call upon a <strong>Mobile Palliative Care Team (EMSP)<\/strong> \u2014 a system created specifically to bring palliative expertise to facilities that do not have it internally.<\/p>\n\n<p>An EMSP is made up of specialized professionals \u2014 doctor, nurse, psychologist, sometimes social worker \u2014 who travel to the establishment at the request of the caregiving team. Their role is one of advice and support, not substitution: they do not replace the existing team, they strengthen it with their expertise and external perspective. They can help assess complex pain, decide on sedation, accompany a difficult conversation with the family, or support exhausted caregivers.<\/p>\n\n<p>Every French department has at least one EMSP. If your nursing home does not regularly call upon it, it is a valuable resource to activate \u2014 without waiting for the situation to become critical.<\/p>\n\n<h2 id=\"droit\">10. A right, not a favor<\/h2>\n\n<p>It is important to clearly remind: <strong>palliative care is a right in France<\/strong>. The law of June 9, 1999, confirmed and strengthened by the Leonetti law of 2005 and the Claeys-Leonetti law of 2016, guarantees any sick person whose condition requires it access to palliative care and support.<\/p>\n\n<p>This is not a favor granted by an understanding doctor. This is not something that is obtained by insisting. It is a right that the resident and their family can request, demand if necessary, and whose absence can be reported.<\/p>\n\n<a href=\"https:\/\/www.dynseo.com\/courses\/fin-de-vie-accompagnement-posture-soignante-et-soutien-des-familles\/\" class=\"internal-link\">\n  <div class=\"internal-link-icon\">&#x1F393;<\/div>\n  <div class=\"internal-link-content\">\n    <div class=\"internal-link-label\">Certified training<\/div>\n    <div class=\"internal-link-title\">End of life: support, caregiving posture, and family support<\/div>\n    <div class=\"internal-link-desc\">DYNSEO Qualiopi training \u2014 palliative care, pain, advance directives, family support. For the entire nursing home team.<\/div>\n  <\/div>\n  <div class=\"internal-link-arrow\">&#x2192;<\/div>\n<\/a>\n\n<div class=\"cta-box\">\n  <h3>&#x1F393; Train your team in palliative care in nursing homes<\/h3>\n  <p>The DYNSEO training \"End of life: support, caregiving posture, and family support\" covers palliative care in its clinical, ethical, and human dimensions. Qualiopi certified, OPCO funding possible.<\/p>\n  <div class=\"cta-buttons\">\n    <a href=\"https:\/\/www.dynseo.com\/courses\/fin-de-vie-accompagnement-posture-soignante-et-soutien-des-familles\/\" class=\"btn-cta-white\">&#x1F4CB; View the program<\/a>\n    <a href=\"https:\/\/www.dynseo.com\/formations\/\" class=\"btn-cta-outline\">All training &#x2192;<\/a>\n  <\/div>\n<\/div>\n\n<div class=\"article-tags\">\n  <a href=\"#\" class=\"article-tag\">palliative care nursing homes<\/a>\n  <a href=\"#\" class=\"article-tag\">end of life support<\/a>\n  <a href=\"#\" class=\"article-tag\">mobile palliative care team<\/a>\n  <a href=\"#\" class=\"article-tag\">right to palliative care<\/a>\n  <a href=\"#\" class=\"article-tag\">comfort at the end of life<\/a>\n  <a href=\"#\" class=\"article-tag\">families palliative care<\/a>\n  <a href=\"#\" class=\"article-tag\">DYNSEO training<\/a>\n<\/div>\n<\/article>\n<\/div>\n\n<\/div>[\/et_pb_code][\/et_pb_column][\/et_pb_row][\/et_pb_section]","_et_gb_content_width":"","footnotes":""},"categories":[2915],"tags":[],"class_list":["post-528415","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-les-conseils-des-coachs"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.5 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Palliative Care: What They Really Are (and What They Are Not) - DYNSEO - Educational apps &amp; 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