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\n “acceptedAnswer”: {
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\n “text”: “Les m\u00eames grandes familles qu’\u00e0 domicile continuent souvent de s’appliquer, mais sous d’autres formes : aide financi\u00e8re ou compensation li\u00e9e \u00e0 la perte d’autonomie, aides au s\u00e9jour, soutien de l’aidant. Les noms des dispositifs, leurs conditions d’acc\u00e8s et leurs montants varient selon les pays et \u00e9voluent r\u00e9guli\u00e8rement : aucun montant ne peut \u00eatre pr\u00e9sent\u00e9 comme certain \u00e0 l’avance. Le service social de l’\u00e9tablissement est l’interlocuteur qui vous dira, au moment de l’admission, quels dossiers d\u00e9poser et o\u00f9. Posez la question d\u00e8s l’admission, pas quand arrive la premi\u00e8re facture.”
\n }
\n },
\n {
\n “@type”: “Question”,
\n “name”: “Comment savoir si c’est le bon moment pour envisager un \u00e9tablissement ?”,
\n “acceptedAnswer”: {
\n “@type”: “Answer”,
\n “text”: “Il n’y a pas de r\u00e8gle universelle. Le d\u00e9clencheur est propre \u00e0 chaque situation : s\u00e9curit\u00e9 de la personne, besoins de soins que le domicile ne couvre plus, \u00e9puisement de l’aidant. Le mieux est d’en parler \u00e0 l’\u00e9quipe m\u00e9dicale et \u00e0 la famille sans attendre d’\u00eatre au pied du mur, puis de visiter plusieurs \u00e9tablissements pour comparer. L’h\u00e9bergement temporaire permet aussi de tester en conditions r\u00e9elles, sans engagement. Anticiper, m\u00eame sans d\u00e9cision arr\u00eat\u00e9e, \u00e9vite d’avoir \u00e0 choisir dans l’urgence la seule place disponible.”
\n }
\n },
\n {
\n “@type”: “Question”,
\n “name”: “Est-ce que je peux \u00eatre aid\u00e9, moi, en tant qu’aidant ?”,
\n “acceptedAnswer”: {
\n “@type”: “Answer”,
\n “text”: “Oui. La plupart des pays pr\u00e9voient des dispositifs destin\u00e9s sp\u00e9cifiquement aux proches aidants : solutions de r\u00e9pit, cong\u00e9s d\u00e9di\u00e9s, groupes de parole, soutien psychologique, parfois formations. Ils sont largement sous-utilis\u00e9s, souvent par m\u00e9connaissance ou par culpabilit\u00e9. Le service social et les associations de patients sont les mieux plac\u00e9s pour vous dire ce qui existe pr\u00e8s de chez vous. N’attendez pas d’\u00eatre au bout du rouleau : la premi\u00e8re demande est la plus difficile, et demander t\u00f4t est pr\u00e9cis\u00e9ment ce qui permet de tenir dans la dur\u00e9e.”
\n }
\n },
\n {
\n “@type”: “Question”,
\n “name”: “La maladie de Parkinson \u00e9voluant lentement, faut-il vraiment tout anticiper ?”,
\n “acceptedAnswer”: {
\n “@type”: “Answer”,
\n “text”: “Oui, mais sans pr\u00e9cipitation. La lenteur d’\u00e9volution est trompeuse : comme rien ne bascule brutalement, on repousse les d\u00e9marches, jusqu’au jour o\u00f9 une chute ou une hospitalisation impose de tout r\u00e9gler d’un coup. Or les demandes d’aide humaine, d’adaptation du logement, de mat\u00e9riel ou de place en \u00e9tablissement prennent du temps \u00e0 aboutir. Anticiper ne veut pas dire tout mettre en place imm\u00e9diatement, mais rep\u00e9rer les portes d’entr\u00e9e, monter les dossiers utiles et conna\u00eetre les solutions de r\u00e9pit avant d’en avoir un besoin urgent.”
\n }
\n }
\n ]
\n }
\n ]
\n}<\/p>\n

<\/p>\n
\n
\n Familles & aidants \u00b7 Parkinson<\/span><\/p>\n

Parkinson en \u00e9tablissement : \u00e0 qui s’adresser, quelles aides et comment tenir dans la dur\u00e9e<\/h1>\nQuand un proche vit avec la maladie de Parkinson, la question n’est pas seulement m\u00e9dicale. Tr\u00e8s vite viennent les d\u00e9marches, les rendez-vous \u00e0 multiplier, les d\u00e9cisions \u00e0 prendre sur le maintien \u00e0 domicile ou l’entr\u00e9e en \u00e9tablissement, et cette sensation de courir apr\u00e8s une organisation qui vous \u00e9chappe. Cet article rassemble tout ce qui touche \u00e0 Parkinson en \u00e9tablissement : aides et accompagnement<\/strong>, du c\u00f4t\u00e9 des familles et des aidants : \u00e0 qui vous adresser, quels dispositifs existent, comment tirer parti de chaque consultation, et surtout comment tenir sans vous \u00e9puiser.<\/pee>\n