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\n “text”: “Un bon rep\u00e8re : le comportement est-il apparu ou s’est-il accentu\u00e9 avec la maladie, et varie-t-il au cours de la journ\u00e9e ? La lenteur, l’apathie, les blocages, les changements d’humeur suivant l’effet du traitement sont des manifestations neurologiques, pas des choix. La personne est r\u00e9ellement capable \u00e0 certaines heures et r\u00e9ellement emp\u00each\u00e9e \u00e0 d’autres. En cas de doute, d\u00e9crivez la sc\u00e8ne pr\u00e9cise au m\u00e9decin ou au neuropsychologue \u2014 heure, contexte, dur\u00e9e \u2014 plut\u00f4t que de la r\u00e9sumer par \u00ab il ne fait pas d’effort \u00bb. C’est le d\u00e9tail qui permet de faire la diff\u00e9rence et d’adapter la prise en charge.”
\n }
\n },
\n {
\n “@type”: “Question”,
\n “name”: “Faut-il aider mon proche \u00e0 s’habiller ou \u00e0 manger, ou le laisser faire seul ?”,
\n “acceptedAnswer”: {
\n “@type”: “Answer”,
\n “text”: “Le principe est de faire avec, pas \u00e0 la place. Un geste r\u00e9alis\u00e9 lentement mais seul entretient l’autonomie et l’estime de soi, pr\u00e9cieuses dans une maladie qui dure. Proposez une aide cibl\u00e9e sur l’\u00e9tape qui bloque (\u00ab je m’occupe juste des boutons \u00bb) plut\u00f4t qu’une prise en charge compl\u00e8te. Adaptez d’abord l’environnement : v\u00eatements \u00e0 fermeture facile, couverts \u00e0 gros manche, moment de la journ\u00e9e o\u00f9 le traitement agit. Si la fatigue ou le risque deviennent trop importants, demandez un bilan \u00e0 l’ergoth\u00e9rapeute, qui proposera des aides techniques et le bon \u00e9quilibre entre autonomie et s\u00e9curit\u00e9.”
\n }
\n },
\n {
\n “@type”: “Question”,
\n “name”: “Mon proche a des hallucinations, dois-je le contredire ?”,
\n “acceptedAnswer”: {
\n “@type”: “Answer”,
\n “text”: “Non, entrer dans un d\u00e9bat pour d\u00e9montrer que \u00ab \u00e7a n’existe pas \u00bb peut l’agiter. Restez calme et rassurant : reconnaissez ce qu’il vit sans valider le contenu (\u00ab je te crois quand tu me dis que tu le vois, moi je ne le vois pas, tu es en s\u00e9curit\u00e9 \u00bb), allumez la lumi\u00e8re, puis d\u00e9tournez doucement l’attention vers autre chose. Les hallucinations, surtout visuelles, peuvent survenir dans le Parkinson, parfois li\u00e9es au traitement, \u00e0 une infection, une fi\u00e8vre ou une d\u00e9shydratation. Toute hallucination nouvelle doit \u00eatre signal\u00e9e rapidement au m\u00e9decin. En cas de confusion soudaine ou d’agitation majeure, contactez les services d’urgence de votre pays.”
\n }
\n },
\n {
\n “@type”: “Question”,
\n “name”: “Je suis \u00e9puis\u00e9 de m’occuper de mon proche, est-ce normal et que faire ?”,
\n “acceptedAnswer”: {
\n “@type”: “Answer”,
\n “text”: “Oui, c’est extr\u00eamement fr\u00e9quent et cela ne fait pas de vous un mauvais aidant. Accompagner une maladie longue, avec des nuits hach\u00e9es et des journ\u00e9es impr\u00e9visibles, use par accumulation. L’\u00e9puisement devient un signal d’alerte quand s’installent troubles du sommeil, irritabilit\u00e9, isolement ou sentiment permanent de culpabilit\u00e9. Parlez-en \u00e0 votre propre m\u00e9decin : c’est un acte de soin. Renseignez-vous aussi sur les solutions de r\u00e9pit, les groupes de parole d’aidants et les associations comme France Parkinson. Se former \u00e0 la maladie aide \u00e9galement \u00e0 mieux comprendre, mieux r\u00e9agir, et se sentir moins seul face aux situations difficiles.”
\n }
\n }
\n ]
\n }
\n ]
\n}<\/p>\n

<\/p>\n
\n
\n Familles & aidants \u00b7 Parkinson<\/span><\/p>\n

Parkinson : 10 situations difficiles du quotidien et comment y r\u00e9pondre<\/h1>\nLa maladie de Parkinson ne se vit pas dans les consultations, elle se vit \u00e0 la maison : dans un couloir o\u00f9 le pied refuse d’avancer, devant une assiette qui refroidit, au pied d’un lit \u00e0 trois heures du matin. C’est l\u00e0, dans ces micro-sc\u00e8nes qui reviennent chaque jour, que la question \u00ab parkinson, que faire ?<\/strong> \u00bb se pose vraiment. Pas en th\u00e9orie, mais dans l’instant, quand il faut r\u00e9agir vite et bien alors que la fatigue et l’inqui\u00e9tude brouillent le jugement.<\/pee>\n