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\n “acceptedAnswer”: {
\n “@type”: “Answer”,
\n “text”: “Entre 30 et 60 minutes au total, d\u00e9coup\u00e9es en s\u00e9quences de 10 \u00e0 20 minutes s\u00e9par\u00e9es par de vraies pauses. Au-del\u00e0, la fatigue de la SEP reprend le dessus et la s\u00e9ance devient contre-productive, parfois pour plusieurs jours. La r\u00e8gle d’or est de s’arr\u00eater avant la fatigue, pas quand elle est install\u00e9e. On place les moments exigeants aux heures de meilleure \u00e9nergie, souvent le matin, et on prot\u00e8ge un temps calme dans l’apr\u00e8s-midi. Un minuteur aide \u00e0 respecter ces limites m\u00eame quand \u00ab \u00e7a allait bien \u00bb.”
\n }
\n },
\n {
\n “@type”: “Question”,
\n “name”: “Comment motiver quelqu’un qui n’a envie de rien ?”,
\n “acceptedAnswer”: {
\n “@type”: “Answer”,
\n “text”: “Trois leviers fonctionnent mieux que l’insistance. Baisser la difficult\u00e9 jusqu’\u00e0 obtenir des r\u00e9ussites, car l’\u00e9chec r\u00e9p\u00e9t\u00e9 d\u00e9courage. Remplacer l’exercice par une t\u00e2che r\u00e9elle qui a du sens : pr\u00e9parer un repas ou trier des photos plut\u00f4t qu’un exercice abstrait. Et rendre le progr\u00e8s visible avec un tableau de suivi. On n\u00e9gocie la dur\u00e9e plut\u00f4t que le principe : \u00ab cinq minutes et on arr\u00eate \u00bb obtient presque toujours plus qu’un rappel des enjeux. Si le refus s’accompagne de tristesse durable, on en parle au m\u00e9decin, car l’humeur se soigne aussi.”
\n }
\n },
\n {
\n “@type”: “Question”,
\n “name”: “Faut-il du mat\u00e9riel sp\u00e9cialis\u00e9 ou co\u00fbteux ?”,
\n “acceptedAnswer”: {
\n “@type”: “Answer”,
\n “text”: “Non. La quasi-totalit\u00e9 des activit\u00e9s d\u00e9crites utilise ce que l’on a d\u00e9j\u00e0 \u00e0 la maison : papier, crayon, courrier, ingr\u00e9dients, jeux de cartes, t\u00e9l\u00e9phone. Les supports DYNSEO sont gratuits et imprimables depuis le catalogue des outils. Un ventilateur, un tableau effa\u00e7able, un grand calendrier et un minuteur suffisent \u00e0 couvrir l’essentiel des am\u00e9nagements. Le seul \u00ab investissement \u00bb r\u00e9ellement utile est un bilan \u00e0 domicile par un ergoth\u00e9rapeute, qui identifie les adaptations prioritaires. La tablette et l’application JOE sont un compl\u00e9ment, pas un pr\u00e9alable.”
\n }
\n },
\n {
\n “@type”: “Question”,
\n “name”: “Ces activit\u00e9s conviennent-elles \u00e0 tout \u00e2ge ?”,
\n “acceptedAnswer”: {
\n “@type”: “Answer”,
\n “text”: “La SEP touche le plus souvent de jeunes adultes, mais elle concerne aussi des personnes plus \u00e2g\u00e9es, et le principe reste le m\u00eame \u00e0 tout \u00e2ge : court, r\u00e9gulier, cal\u00e9 sur l’\u00e9nergie. On adapte le contenu aux centres d’int\u00e9r\u00eat et aux capacit\u00e9s de chacun, pas \u00e0 l’\u00e2ge en soi. Pour une personne plus \u00e2g\u00e9e ou moins \u00e0 l’aise avec le num\u00e9rique, l’application EDITH offre une interface simplifi\u00e9e. Dans tous les cas, c’est l’\u00e9quipe de soins qui aide \u00e0 ajuster les activit\u00e9s au profil de votre proche : n’h\u00e9sitez pas \u00e0 lui montrer cette liste.”
\n }
\n }
\n ]
\n }
\n ]
\n}<\/p>\n

<\/p>\n
\n
\n Familles & aidants \u00b7 Scl\u00e9rose en plaques (SEP)<\/span><\/p>\n

Fatigue et troubles cognitifs dans la SEP : activit\u00e9s, supports et am\u00e9nagements concrets \u00e0 mettre en place<\/h1>\nFace \u00e0 la fatigue et aux troubles cognitifs dans la SEP<\/strong>, ce sont rarement les grandes d\u00e9cisions qui changent le quotidien, mais les bonnes activit\u00e9s<\/strong> et les bons outils<\/strong>, r\u00e9p\u00e9t\u00e9s jour apr\u00e8s jour. La scl\u00e9rose en plaques fatigue autrement que le reste : une lassitude qui tombe sans pr\u00e9venir, un cerveau qui met plus de temps \u00e0 trier l’information, une pens\u00e9e qui s’embrume en fin de journ\u00e9e. On ne combat pas cela \u00e0 la volont\u00e9. On l’am\u00e9nage.<\/pee>\n