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\n {
\n “@type”: “Question”,
\n “name”: “Jusqu’o\u00f9 le laisser faire seul, m\u00eame s’il est lent ?”,
\n “acceptedAnswer”: {
\n “@type”: “Answer”,
\n “text”: “Le principe : laisser faire tout ce qui peut l’\u00eatre, m\u00eame lentement et imparfaitement, car chaque geste r\u00e9alis\u00e9 seul est un geste acquis. Faire \u00e0 sa place \u00ab pour gagner du temps \u00bb prive d’un apprentissage pr\u00e9cieux. Adaptez la marche \u00e0 ses capacit\u00e9s r\u00e9elles : d\u00e9coupez la t\u00e2che pour qu’il r\u00e9ussisse au moins la derni\u00e8re \u00e9tape. L’autonomie se construit par petits paliers, en s\u00e9curit\u00e9, en f\u00e9licitant chaque r\u00e9ussite. Pr\u00e9voyez simplement plus de temps dans l’organisation, plut\u00f4t que de reprendre syst\u00e9matiquement la main.”
\n }
\n },
\n {
\n “@type”: “Question”,
\n “name”: “Que faire face \u00e0 une crise que je n’arrive pas \u00e0 calmer ?”,
\n “acceptedAnswer”: {
\n “@type”: “Answer”,
\n “text”: “Pendant une crise, aucun raisonnement ne passe : la priorit\u00e9 est de baisser la stimulation. R\u00e9duisez le bruit, la lumi\u00e8re, le monde autour, gagnez un endroit calme, parlez peu et d’une voix pos\u00e9e. Restez pr\u00e9sent et rassurant sans forcer le contact s’il le refuse. On ne rediscute qu’une fois le calme revenu. Si les crises sont fr\u00e9quentes, intenses ou vous d\u00e9passent, parlez-en au m\u00e9decin ou au psychologue qui suit votre adolescent : ils peuvent aider \u00e0 en identifier les d\u00e9clencheurs et \u00e0 construire des r\u00e9ponses adapt\u00e9es \u00e0 sa situation.”
\n }
\n },
\n {
\n “@type”: “Question”,
\n “name”: “Comment g\u00e9rer le regard des autres dans les lieux publics ?”,
\n “acceptedAnswer”: {
\n “@type”: “Answer”,
\n “text”: “Le regard des autres est l’une des \u00e9preuves les plus difficiles, et elle est r\u00e9elle. Sur le moment, votre priorit\u00e9 est votre adolescent, pas le jugement ext\u00e9rieur : occupez-vous de lui d’abord. Beaucoup de familles trouvent utile de pr\u00e9parer une phrase courte et neutre \u00e0 sortir si besoin, du type \u00ab il a besoin de calme, on g\u00e8re, merci \u00bb. Sur la dur\u00e9e, \u00e9changer avec d’autres parents, via une association, aide \u00e0 all\u00e9ger ce poids. Vous n’avez pas \u00e0 vous justifier, et vous n’\u00eates pas seul dans cette situation.”
\n }
\n },
\n {
\n “@type”: “Question”,
\n “name”: “Est-il normal de me sentir \u00e9puis\u00e9 et d\u00e9pass\u00e9 ?”,
\n “acceptedAnswer”: {
\n “@type”: “Answer”,
\n “text”: “Oui, et c’est tr\u00e8s fr\u00e9quent. Accompagner au quotidien demande une \u00e9nergie consid\u00e9rable, et l’ambivalence \u2014 aimer profond\u00e9ment et se sentir \u00e0 bout \u2014 fait partie du v\u00e9cu de beaucoup de familles. Cela ne fait pas de vous un mauvais parent. La fatigue devient un signal \u00e0 prendre au s\u00e9rieux quand elle s’accompagne d’un \u00e9puisement durable, de troubles du sommeil, d’un isolement ou d’un sentiment permanent de culpabilit\u00e9. En parler \u00e0 votre m\u00e9decin, chercher des relais et du r\u00e9pit est un acte de soin : tenir dans la dur\u00e9e suppose de prendre soin de soi aussi.”
\n }
\n }
\n ]
\n }
\n ]
\n}<\/p>\n

<\/p>\n
\n
\n Familles & aidants \u00b7 Trisomie 21<\/span><\/p>\n

Faciliter l\u2019autonomie au quotidien d\u2019un adolescent trisomique : 10 situations difficiles du quotidien et comment y r\u00e9pondre<\/h1>\nLes vraies difficult\u00e9s, avec un adolescent porteur de trisomie 21, ne sont presque jamais celles qu’on avait imagin\u00e9es. Ce ne sont pas les grandes d\u00e9cisions qui coincent, mais les sc\u00e8nes minuscules qui reviennent chaque jour : un pull qui ne veut pas passer, une douche refus\u00e9e, une file d’attente qui tourne \u00e0 la crise, une tablette qu’on n’arrive plus \u00e0 \u00e9teindre. C’est pr\u00e9cis\u00e9ment sur ces moments-l\u00e0 que se joue la question centrale de toute famille : comment faciliter l’autonomie au quotidien<\/strong>, et surtout que faire, concr\u00e8tement, quand la situation d\u00e9rape ?<\/pee>\n