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Living Long-Term with MS: Caregivers, Relationships, and the Future

Categories: Family
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About Course

This 2-hour training is aimed at families and loved ones who have been supporting a person with MS for several years. MS is a long-term illness — and long-term support raises questions that training on diagnosis does not address: how to endure without exhausting oneself, how to maintain a couple’s relationship when roles have changed, how to envision the future as the illness progresses, how to continue living one’s own life while remaining present. This training provides long-term caregivers with the tools to cope, without sacrificing themselves, without losing themselves.

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Course Content

Module 1 – The long-term caregiver — portrait of an unknown reality

  • Lesson 1 – What changes when you have been providing support for years
  • Lesson 2 – The difficult emotions of the long haul
  • Lesson 3 – The risks of long-term caregiver burnout
  • Lesson 4 – Finding meaning in support

Module 2 – The long-term couple relationship

Module 3 – Envisioning the future with clarity

Module 4 – Resources and support for long-term sustainability

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